School's Out For Summer

I posted a status on Facebook about how Kevin, on his first day of summer vacation, brought me breakfast in bed. He always promises that this type of doting behavior (along with flowers every week or two) isn't because we are newlyweds and will continue throughout our lives. Here's hoping, because I feel so lucky to be spoiled and pampered. Let me tell you, it's not bad being treated like a queen.

After that lounging start, we went to work. It was a very physical day for me -- much more than I normally would ever pack into one day. Call it end of spring cleaning. 

Tuesday night we bought a new-to-us bookshelf off Craiglist, from a guy in Fairfax. We already have two bookshelves that are about 8 and 9 feet respectively and one in the 4 foot range. We turned a skinny 4-footer into a DVD shelf. The remaining three were not even close to enough room for the book collection of a couple who met working for their college newspaper. We are book nerds, plain and simple. And we can't even merge our collections because we have different ways of organizing our books. Kevin does what probably every normal person does (or would do if they read) and alphabetizes by author. I would, except I can't. I'm serious, with my "memory" or lack thereof I can't! I'd never find anything because I don't know who wrote it, unless it's Stephen King. So I clump my books in sections based on topics (a much broader thing to remember than a person's name!). I have sections on poetry, sports, animals (subsections: dog fiction, pit bulls, and sharks), philosophy, vampires, Stephen King, Harry Potter, Chicken Soup for the ______ Soul, mafia, religion/spirituality (subsections: new age, Christianity, and Wicca), college books I found interesting enough not to sell back, etc...

While Kevin reorganized our bookshelves and vacuumed the house, I gave our 4 bathrooms a thorough, deep scrub clean (top to bottom, every nook and cranny). Four bathrooms sounds awesome when you're shopping for a home. It is not awesome when you have to clean all of them. Halfway through cleaning the bathrooms, I took a "break" to organize our office with Kevin. Over the last two months we haven't ever put anything away in the office. We've just put office-type stuff into unassigned piles. Afterward, we went on our daily family walk, which is Blaze's long walk of the day. 

When all was done except the half bathrooms, we made ourselves a lovely dinner that happened to also require a lot of work. We had grilled kabobs: chicken, grape tomatoes, and both green and red peppers with a side of corn on the cob. Kevin cut the chicken; I mixed together a marinade for the chicken: a blend of teriyaki sauce, EVOO, egg, poultry seasoning, and lemon pepper. Kevin chopped veggies and shucked corn; I cleaned the main level half-bath. We skewered together.

We ceremoniously started our brand new grill (thanks to my in-laws!) together. Our grill is charcoal, because I'm old school and had no interest in a new, schmancy propane operated machine. Kevin's used to boiling corn and a more modern style of grilling, so when it came time to cook, I (wo)manned the grill. And while the coals were burning I cleaned the basement bathroom. 

We sat down to dinner at our brand new patio furniture (courtesy of Kevin spoiling me with stuff for the house). Dinner was fantastic. We considered our first new-grill meal a huge success, and we're very happy that grilling burgers is on our menu for next week. For his part, Blaze probably ate an entire pepper's worth of veggies, because we made way too much.  

In other backyard news, I've grown lush new grass (which is ironic because I have killed my one houseplant). We had a patch that was overrun with rocks and weeds, except for a few poorly maintained rose bushes. About 2-3 weeks ago, I poisoned and ripped out the weeds and raked the area until I got fresh dirt and sprayed out grass seed. With all the rain we've been getting it has flourished. Mommy made great grass for Blaze!

In healing news..... No, I'm still not getting any better, but my henna-like tattoo is all healed up. And quite pretty, if I may brag about my ink ;)

One more piece of healing! My scar, from the March surgery. My physical therapists always comment on how well it has healed. Nothing else is healing, so at least there is that!

PT in one hour! And pain doc, maybe resuming injections, tomorrow! Updates likely to follow....

How'd Florida Go?

As you may have read in my last post, traveling isn't great for me. The pressurized cabin, the bumps, so many things mess with my pain level. Kevin made it as tolerable as possible, but it was still a very bad situation for me. To simplify how bad it was, Kevin suggested for our honeymoon we only consider places we can fly direct to, because he doesn't want to see me go through that again. (I said no, if my honeymoon isn't worth sucking it up for, whatever would be? And I'm not willing to concede defeat like that.)

After landing, things didn't get a whole lot better for me. The taxi ride was bump after bump the entire way out. By the time we checked in at the hotel, it was time to get ready for the wedding. No rest for me, and god knows I need my naps to survive. So I made do with some energy drinks (I usually stick to just coffee), and I managed to not just survive, but also actually enjoy the night. The wedding was on the beach, and the reception was in a ballroom overlooking the beach, so while at dinner we got to see the sunset of the Gulf. Perfection.

I faded early inthe night but managed to hang on until the end, and even get some dancing in despite my body. Kevin was an angel, offering to leave early with every sign of my pain or fatigue, but I felt I had to hold out for the whole event. I mean, the "Chadresa" wedding is why we were in Florida to begin with. How could I leave early? Of course, as soon as I got to our hotel-home I crashed very hard.

We slept in all day Sunday, which was needed for my recovery. This isn't just the TOS, but also the CFIDS coming in to play. After several cups of coffee, we hit the beach early in the afternoon and relaxed. We sunned both sides equally, with me slathered in SPF 50. (Sunburns mean more pain, more dehydration, and more health problems in general. I'll stay pale if need be.) Then we went to play in the water. Floating and flirting in the Gulf felt so freeing. I forgot that what I was doing could be considered exercise.***

When we left the beach we decided ordering carryout would suit my body much better than going out. We got delicious calzones from a local Italian pizza place. Kevin set the table while I sat slumped over in my chair, and he asked if I was just tired or if it was something else. I said it wasn't tired, it was beyond exhaustion...meaning CFIDS related. 

Five bites into my 3-cheese piece of heaven I had to give up. I asked if he minded if I excused myself and apologized for not finishing dinner with him. I went to go lay on the couch and asked him to come sit with me when he was finished eating. Apparently I passed out quickly, only stirring for him to settle in with me moving my head to his lap, then I stayed out for 2 hours. I awoke disoriented and still exhausted. I ate a little more, knowing my body needed more nourishment ("food is fuel!"), and we went to bed soon after.

Monday morning meant checking out and another long, bumpy trip to the airport. I had nothing to do but sleep through much of the ride -- when my body is in pain, that is one of the best things I can do for it. We arrived with plenty of time, and that means good things for me. It means less stress, less fuss, and time for coffee. Fortunately our return flight was a direct flight, so we had it quite a bit easier upon the return home.

Fast forward to Monday night, and it's like Sunday night on repeat. I was dead to the world. We were watching some TV and I felt my eyes getting heavy, thought I'd rest a little, but then 1.5 hours passed and I woke up so groggy and disoriented. Kevin explained to me how long I'd been in & out, and that I'd oddly requested "my food" and said some other things. I apologized for not making him the Sloppy Joe dinner I'd promised.

Tuesday was still much of recovery mode. I slept in extremely late and felt it in my muscles and bones and entire being all day. I explained to K, and I'll now explain to you, that's just the way CFIDS works. It's not tit-for-tat. One day of exhaustion does NOT mean one day of recovery. I wish it did, but that's just a dream world. It's not reality. So we will see how the next few days go. Kevin's birthday is tomorrow, so tonight we are celebrating with his family and tomorrow we are celebrating with just us. I'll spend my days resting while he is at work, so I have a good reserve for the evening activities. And I'll keep you posted.


***Happy story: While we were packing up our beach bag, I noticed Kevin playing with his wedding band, and realized he had a noticeable tan line. If you know me, you know I'm the girl who has a song lyric for every situation and immediately the beginning verse of Ed Sheeran's "Wake Me Up" started playing in my head.
I should ink my skin with your name/ And take my passport out again/ And just replace it/ See I could do without a tan/ On my left hand/ Where my fourth finger meets my knuckle
ENJOY!

Real time... Traveling!!

Kevin's friends are getting married today. On a beach on the gulf coast of Florida. I'm pretty sure it's the sunset, barefoot ceremony I've always dreamt of... And I haven't yet met these friends, so I'm honored to be there.

Unfortunately getting there means flying, and flying means a lot of bad things for me. I've flown alone since I was 15. Several flights alone since then. Florida. NC. LA. Bahrain. I've had layovers and missed flights and craziness.

Today I realized in this present health state, flying alone is another "thing I can't do." But Kevin, as always, is making sure to help with every possible thing that could go wrong. Within his control. He can't help how the pressure affects my swelling and pain...but he soothes me. He holds me still during the bumps that cause so much extra pain. He handled check-in. He carries the bags. He remembers to walk at my pace. He helps with my sweater on and off, zippers, and all. He body blocks other people from bumping me. He asks my every pain and symptom and ache, so, as he says, he knows how to help me. In all the hustle and bustle of traveling, his still on top of pill-time for me.

Without a complaint. Without a cross word to me. He doesn't do these things begrudgingly. He does these things with a smile, with lots of "I love you's" and forehead kisses.

We are on a layover now. Before our first flight I was terrified. So many things could be bad flying in my condition. But now I feel relaxed, I feel much more at ease. I'm learning to trust that he's got it. I am so used to being in control all the time, but I can't be anymore. I can follow his lead and it'll be okay. He's got this... And me.